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When I was diagnosed with stage II cutaneous T-cell lymphoma in November 1998, I thought I was going to die. The reason? I did exactly the wrong thing and looked up my diagnosis online. One of the first articles I found there said that this type of non-Hodgkin lymphoma had an excellent survival rate: five years.??

I still had a child in college at the time. So, I remember thinking, ¡°Wait a minute. Just five years? That...