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In the spring of 2017, my husband Bill and I were getting ready to travel and do some charitable work. We¡¯d finished raising our children and had been very active in our grandchildren¡¯s lives, so we were looking forward to some time for ourselves.

Then, Bill was diagnosed with myelofibrosis. And all of our plans came to a grinding halt.

Fortunately, we knew what to do. One of our daughters was born with Down syndrome, and...